Delhi High Court Forms Panel to Strengthen Crowdfunding for Rare Disease Treatments

The Delhi High Court, presided by Justice Sachin Datta, constituted a four-member committee to enhance crowdfunding efforts for rare disease treatments under the National Policy for Rare Diseases, 2021.

The committee, chaired by Rajiv Bahl, V.K. Paul and Joint Secretary-level officers from the Ministry of Civil Aviation and Department of Public Enterprises.

The Court directed the committee to raise donor awareness, mobilise CSR funds, and monitor policy implementation through monthly meetings, stressing a humane and inclusive approach to rare disease management.

[Miss Kiara Rawat Through Mrs Lovely Gusain v Union of India & Ors.]